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Thursday, August 30, 2012

Week 21- Rohan has been struggling with change of weather !!

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.This is just one of the multiple therapies he is going through. Meet and Support Rohan at www.rohansjourney.com

Rohan is still struggling founding his voice due to verbal Apraxia. Now He will say B with prompt but that's about it.

I have not been writing too much, Weather is changing and thus Rohan. Rohan has been struggling with Cold,Flu and Fever due to weather changes.So was not able to run play-therapy session with him

Rohan has been going for NAET therapies, which has reduced number of play-therapy sessions in the evening. Since the therapies started - he seems to make more sounds, but he seems to regress in other aspects like eye-contact, throwing more tantrums and is more lost now. We are hoping its a phase and will pass by. Rohan has been going through NAET therapies since 2 months now. We will give it couple of more weeks and see how it goes !!

Its like choose your battle - Not sure what's working and what not.

Life with Autism will be never boring , it will be always full of adventures !! Autism requires patience and hard work.  Do you have that ?







Tuesday, August 21, 2012

Rohans's Fundraising Event at West Long Branch,NJ

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.This is just one of the multiple therapies he is going through. Meet and Support Rohan at www.rohansjourney.com


Rohan is still struggling founding his voice due to verbal Apraxia. Now He will say B with prompt but that's about it.


We are having our First Fundraising Event in West Long Branch in NJ, Any purchase you will make- all the proceeds will go towards Rohan's treatment.











Thursday, August 16, 2012

WEEK 20 - SON-RISE DAY 27 - R was playing with me even in that stimming

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.This is just one of the multiple therapies he is going through. Meet and Support Rohan at www.rohansjourney.com

Rohan is still struggling founding his voice due to verbal Apraxia. Now He will say B with prompt but that's about it.

I had my 75 minute session with Rohan yesterday. This session was much better than last session. He was playing much better. Last month we did not see too much motivation in Rohan to play with any of the volunteers. He was stimming most of the time in play-room. so in our monthly meetings Rohan's parents suggested not too put too many verbal demands in front of Rohan - like we should not place demands for him to say sounds,words. And looks like since everyone reduced those demands, Rohan is now interacting more in playroom also. Its like some pressure just came off from Rohan's shoulder.

Remember Rohan and Verbal Apraxia due to which making any sort of sounds takes a lot from him. He still just says 'Ba', once a while 'aa' or 'ee'

Yesterday Rohan just wanted to bounce on the ball. In between when I will stop bouncing he will prompt himself to say "Ba".




Rohan also played with Balloons by throwing them up in the air, trying to do what I did. Though his was more like freeing the balloon out of his hands on the floor. But he tried and was trying to imitate my actions.

For about 25-30 minutes Rohan was stimming using cashew in his hand. I tickled him in between and he will response to it by smiling or moving my hand away.

Over all this was much interactive session than last one.

Thursday, August 9, 2012

WEEK 19 - SON-RISE DAY 26 - R was stimming for 45 minutes

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.This is just one of the multiple therapies he is going through. Meet and Support Rohan at www.rohansjourney.com


Rohan is still struggling founding his voice due to verbal Apraxia. Now He will say B with prompt but thats about it.

I had my 75 minutes session with R. He did asked twice to get out of the room, but somehow ticking him distracted him back in the room.

I joined R in the playroom while R was having play-therapy session with his Mom. He was stimming lying down on the ground. As soon as I entered the room,he saw me and pointed towards the Ball ....prompting himself to make B sound.
I got the gym ball down from the shelf and we bounced on the ball. When I stopped bouncing he will prompt himself to say ''Ba', which means bounce him more.

In between the session I asked R to say more aa,ee and he prompted himself to say those sounds.

Once we were done bouncing the ball, he pointed at shelf to get the Potato Head down. We played with Potato head. The potato head game went for like 5-7 minutes and was interactive.

Once we are done playing with potato head game, Rohan was more into stimming. His stimming included climbing on the table and sitting down rubbing his toes, He was walking across the perimeter of the room. In between he will give me eye contact. But he did not wanted to play with any games. Maybe we need to just come up with more ideas for fun games for him.

Rohan's mom told me that they even got some feedback from the school saying that he is making less eye contact and is less interactive nowadays.

We are trying to figure out what caused this regression. Rohan is going though NAET therapies and is also on special diets and diet supplements.












Thursday, August 2, 2012

WEEK 18 - SON-RISE DAY 25 - R wanted to either bounce on the ball or stimming

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.This is just one of the multiple therapies he is going through. Meet and Support Rohan at  www.rohansjourney.com

Rohan is still struggling founding his voice due to verbal Apraxia. Now He will say B with prompt but thats about it.

Yesterday I had about 90 minutes son-rise session with R. He entered the room with 2 pretzel sticks and lay down on his crash-mat. He was stimming with the pretzel sticks, so I joind him. Somewhere in between that stimming I got his attention and now he pretended to feed me pretzels from his hand. He finally ate the pretzels
In between he will get up from the crash mat and jump on floor, back to crash-mat. I did the same with him.

R got up from crash-mat and pointed to get the big gym ball of the shelf. He took my hands to make me sit on the ball. And then he used his hands telling me to lift him up while he sat in my lap. He prompted himself the sound "B" to bounce. So we bounced on the Ball. In between I was asking him to scream "Aa", "ee", "Ma". So he did scream "Aa" but with his tongue out and lowered to his mouth. For "Ma" he just said "Ba" again. This went on for like 10-15 minutes .

R bounded twice with me, one time facing the mirror and other time facing me, though he was not looking at me.

R was again back on crash-mat after we were done bouncing on the ball. At some point taking advantage of the eye-contact I took the Baby-Einstein alphabets down on the floor. But he mostlyy used them for stimming. Book for letter "B" had Banana on it and he again pretended to eat it with me.

Now he wanted to go out of the son-rise playroom. So I explained him we have to play more. But he still wanted to get out of the room. I walked away from him and sat in the corner making some sounds with my tongue. He noticed me and came back on crash mat.

But now R was just stimming on the crash-mat. he will get up, jump on the floor and back to crash mat.

Finally it was time for me to go home also, so we got out of the room.

So looks like R wants to talk but does not know how.