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Sunday, May 27, 2012

WEEK 8 - SON-RISE DAY 12 -Potato Head Day and R Hugged me again

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.When I refer to Stimming , it is the repetitive behavior R does while lost in his world

After a long week of my allergies, finally I had my chance to run the play-therapy with R. I went over and asked him to give me hug. I had my arms wide open pointing towards him. It took him a moment but he came to me and wrapped his arms around me.R hugged me again !!


This afternoon R made various Baah sounds to get his toys from the shelf in playroom. First half of the session for R was more about spinning the ball. I joined him in spinning the ball. It is so interesting to watch him spinning the ball, He does it with so pefection and precision. I can never spin the ball in the way R does.

Somewhere when he made eye contact with me. I climbed the crash mat and  bounced the ball back and forth from the wall. R tried to do the same thing.

Second interaction with R was our favorite running game.



And the fun part- our longest interaction happened - when R played the Potato Head game with me. We had party with potato head !! R was assembling the Potato Head in the order I handed him the parts and pointed it to him.

Today was overall a Happy day for me. Dear R , I look forward to more fun days !!


"Please Support FUNDRAISING EVENT for R - Garage Sale in USA/NJ/Manalapan - JUNE 9th" More information coming soon, If interested leave me a comment "

Thursday, May 17, 2012

Week 7 - SON-RISE DAY 12 - R tried to dribble the Ball

R Tried to Dribble the ball !!

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia . R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.When I refer to Stimming , it is the repetitive behavior R does while lost in his world

We have learnt to celebrate little things in life with R. Things that are trivial are important for us in this Relation with R

Yesterday after a week , I finally got my chance to run play-therapy with R. R was having cough and congestion, still not fully cleared up. But I thought let me go and run my play-therapy session since I won't be seeing him next week. I am going on vacation for a week with my family to Arizona.

R was in basement driving his little cycle. R's mom gave me some snacks to make him go in the playroom. R wanted to bring his cycle in the playroom also, So explained R  "You can have the snack if you come inside the room, but cycle stays outside." . R immediately left the cycle and came inside the playroom.

R started munching on his snack and I joined him. Then I brought out little surprise for him, A Keepon. R looked at it for a second, squeezed it and threw it away. So I kept it back on the shelf.



Keepon-

I had couple of interactions with R and he also gave me multiple eye contacts , But eye-contacts were not that long enough. Even though I was able to interact with R more than usual.

R was spinning the ball, so when R made eye contact with me, I started dribbling the ball. R tried to do that also.

At one point R was spinning the ball towards me, I spinned it back towards him. This went couple of times. At some point when R gave me eye contact. I threw the ball towards the ceiling and back into my hand. R tried to do the same thing once without spinning. But rest of the time he used my trick to spin the ball from a height

R looked at me again at some point, so I asked him. "Do you want to play running game" He understood and took his position across the wall in front of mirror. When I was counting, R made sounds like Bbbbbb.... everytime. And we ran on "RUN". I stopped after first game. R came to me to play another game by taking me next to mirror in standing position and he made Bbbbbb sound. So we ran again.

R was making Bbbbb sound for everything in yesterday session.

I am still waiting for the day when R will count for me and say "RUN" !!


"Please Support FUNDRAISING EVENT for R - Garage Sale in USA/NJ/Manalapan - JUNE 9th" More information coming soon, If interested leave me a comment !!





Sunday, May 13, 2012

Mother's Day - R's GIFT to her MOM

R is 4 years old and has Autism and Apraxia.
Every little step from R is a celebration for us.
And proved
ACTIONS SPEAK LOUDER THAN WORDS !!

It's late, and I already tweeted it. But I do want to mention this in my blog.

R's mom called me and said that she went to R's school for Mother's Day function.

R's teacher told R that his Mom was here in the school, But at that moment he did not paid attention and was still busy doing his thing. Afterwards when all the kids sat down and took there seats. While other kids were busy listening and performing actions from poem.  just kept on pointing to his Mom in the room.

 R's teacher told R's Mom, that he does know how to perform this action. But R's mom told teacher "She does not care, she just knows this is first time R pointed to her and that's more than enough for her"

For first time R pointed at her mom in the school ! He has never done that before !!

Way to go R , This is an truly awesome Mother's day Gift !!


HAPPY MOTHER'S DAY

Wednesday, May 9, 2012

Week 6 - SON-RISE DAY 11 - Story of Little Boy

There is a little boy , I know him since the day he was born !!
But I feel like I still don't know him and so much to learn.

R was diagnosed with Autism 2 years backs. And recently got diagnosed with Apraxia .  R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to treat his symptoms related to Autism.When I refer to Stimming , it is the repetitive behavior R does while lost in his world



I went to volunteer for my  play-therapy session with R. I left my 2 yr old Y with my husband. Looks like Y missed me during that whole time. My husband told me he cried for 10 minutes after I and was left looking for me !!!!!  I was like Ah , different thoughts crossed my mind but got settled after I started watching the show "New Girl" :)

Yesterday's session went well. R interacted with me couple of times.

R was spinning the ball, so I spinned the ball in parallel to him. His Blue Beach ball came towards me and he made eye contact with me which was long enough for me to make a game out of that spinning ball. I threw the ball towards him and stood half way up with my hands wide open. R spinned the ball bback towards me. I again threw the ball towards him, trying to get him throw straight instead of spinning towards me. He did it , He did it - He threw the ball towards me without spinning - TWICE !!

Second interaction I had with R with the same ball, but this time I bounced the ball towards the wall and back to me. He tried to do the same thing Twice !! Nice Job R, I love you so much :)

We again did our running game where he ran twice with me on count of 1 to 10 . AFter that he wanted him to be carried to take the Foam pillar down from the rack. I tried several times so that he can point and tell me what he wants, but he just kept on raising his hands so that I can pick him up. So I did and he grabbed the Foam pillar from rack towards the floor and that was end of that part.


At one point as he made eye contact with me, I took the juggling balls and juggled twice, He  watched me, came to me and told me with sign language "All Done" !! I will consider that as my Bonus round of interaction :)


R did got Hyper couple of times and was trying to tackle me using his head. So I gave him deep pressure hugs, which worked everytime !!

Overall I had really good time with R in this session.

Dear R , I look forward to more wonderful sessions with you where you play, I play with you. You talk and I listen to you !!

Week 6 - SON-RISE DAY 10 - Tried to Imitate me !!

R was looking at me and smiling moving his head and if I remember correctly also tried to move his shoulders  !!


R was diagnosed with Autism 2 years backs. R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to cure his symptoms related to Autism. I refer to word Green Light sometimes which means getting eye contact from R. When I refer to Stimming , it is the repetitive behavior R does while lost in his world


I got the opportunity to run another son-rise session with R. We started our session eating Pistachios and while R was enjoying his Pistachios, I also joined him. I made couple of faces and moved my head with my arms from left and right.
R also tried to move his head from left and right, but he could not imitate of moving the arms. Though he did tried, it felt like. This interaction went on for a 1-2 minutes.
 
Another interaction we had during the stimming phase was when R was looking into the mirror. I went and stood in front of the mirror like in a running position. R stood next to me and he was making noises like telling me count, so we can run. I counted giving him chance to make some sounds at every count. At this point not sure if R made the same sound or different sounds for each count from 1 to 10. He ran on every run and this went on for 1-2 minutes.
 
R had this foam pillar placed on top of the shelf. He wanted me to lift him up to get the pillar. So he will come to me and make noises. We did that back and forth for a minute. But afterwards I realized maybe it was better to make him point and ask him what he wants !! As I said I am learning also as I am going.


 
Rest of the time R was jumping and stimming across the sides of his crash mat. I was doing the same thing. In between he was getting Hyper and coming to me like he wants to tackle me or hold onto something. So I will give him deep pressure hugs, which will calm him down
 
And after that we left the room
 
I am still waiting for the day when you will count so loud that I will have to ask you slow down your voice !!

Sunday, May 6, 2012

WEEK 6 - Inspired by VALENTINO

WEEK 6 OF NO SHOPPING

Its been more than A Month since I shopped for clothes,shoes,accessories .....you name it !!!!!
I am sometimes so close to buying something, when this big VOICE come in my HEAD..... "Remember, you pledged  not to SHOP, SO LIVE with it , no one forced you NOT TO SHOP "

And I am living with it every moment , just how R and his family lives with Autism every moment !!

This time I picked look inspired by VALENTINO SPRING 2012 COLLECTION. Even though I am not that big on Long sleeves, Gold and Shimmery looks, but Once a while it definitely grows on you.

So here is the image taken from Vogue.com

Source:Vogue.com

Here is my look ,This one below is like more than 10 YEARS OLD !!  It is also my favorite, especially with Turquoise and Gold . My look is more like short sleeves and not complete Gold Look. But I like mix and match !!

Source:Mywardrobe

Saturday, May 5, 2012

My First Autism Talk to Public

I made through the Autism Talk without tears !!

Somehow I managed to give my first talk on Autism in public in front of  250 people to a non-profit organization to raise Autism Awareness and Find R volunteers.

I thought I should put it on my blog also. Here it goes .........

Hello Everyone,

Past couples of years were life changing for me and my family. We discovered my nephew R who is 4 years old has Autism . I asked  if the organization can take on this Project to help R with Autism. A project which can help him lead normal life and show hope to other kids with Autism.
Since I just have 3 minutes I am going to keep this short and sweet , limiting to 4 simple questions.
First Question,What is Autism, Autism is a generic term for a group of complex disorders in brain development. These disorders are characterized in varying degrees, by difficulties in social interaction, verbal and non-verbal communication and repetitive behaviors..….Basically kids are lost in there world and has no interest in yours. They are not able to implement simple things from life like wearing your socks or raising your arms when putting on a tshirt.

Second Question,Why I am talking about Autism,  To raise awareness and ask for help !! We sometimes feel sorry for people who have kids with special needs. But did we ever think this can happen to any of us also. I never thought someone in my family will have a child with Autism. Autism has been declared epidemic by CDC in USA. 1 in 88 kids have autism,This number is 1 in 45 for boys. This means our generation/or newer generation should be worried or thinking even before having kids. There is no way to even detect that something is wrong with the child during pregnancy or even after birth. There are hundred different theories on cause and treatment for Autism but nothing proven.
Third Question,What does R have It took So many efforts, going in circles, disputes with insurance, pushing the doctors and searching on Google. Finally after 3 years doctors could diagnose R with Autism and Apraxia. Now Apraxia is another disorder which sometimes comes with Autism, where he does not know how to use his words. R is under multiple therapies, diet restrictions which may help to improve his symptons

I have known R from 4 years. I can count the number of times he called me aunt because they are none. I can count number of times he made eye contact with me, because they are 5. I can count number of times he hugged me because it’s just 1

Last Question,How can you Help.
R’s parents are running play-therapy which is associated with non-profit son-rise.org. They are looking for volunteers to run this play therapy. In this therapy program you have to spend time playing with R. You have to gain his trust,faith and show your love to bring him back to our world. This therapy program itself can take several years, but we are looking for 2-3 month commitment per volunteer . We need 12-15 volunteers per period. Play- therapy has treated lots of kids with Autism and the concepts are very similar to what has been offered in Parenting workshops like:-

Use positive,constructive, attitude towards your kids.

Don’t say NO and yell at them.

Gain there trust,Love and faith and they will come to you and I can go on forever to add to this list !!

R is now 4 years old and I ran 6 therapy sessions with R, After those sessions, He hugged me for first time and has made eye contact with me 5 times.
No prior experience is required for volunteering for this Play therapy !! We will need volunteers every 3-6 months. Anyone who can devote 2 hours every week even if it is for 2-3 months can volunteer. R’s parents will provide necessary training which is about 2 hours. Interested volunteers don’t need to bring anything just your love,devotion,patience,enthusiasm and positivity. Please help R to lead normal life and show hope to other kids like R  by taking on this project .

I have some flyers with me . For more information or flyers, you can contact me anytime, I will be here !!

Thanks !!

Thursday, May 3, 2012

Week 5 - SON-RISE DAY 9 - Kicking the Ball !!


R kicked the ball for couple of seconds !!


R was diagnosed with Autism 2 years backs. R is now 4 years old. We started SON-RISE program with R couple of weeks backs. SON-RISE is a Play-therapy program that I am volunteering for . The Play-Therapy is associated with son-rise.org to cure his symptoms related to Autism. I refer to word Green Light sometimes which means getting eye contact from R. When I refer to Stimming , it is the repetitive behavior R does while lost in his world 
  

My son Y had cold,fever. I couldn't go to for R's play-therapy session. But finally I had my husband come home earlier to watch Y so I can go for R' play therapy session. R was running around the house when I got there. I took his favorite snack, which my reader may know by now and took him downstairs for play-therapy session.

I requested R's parents before the session to remove all the tables,trampoline from the room. He was stimming too much with all those objects. R sat down eating his favorite snack , I did the same. R fed his doll again , which he does every-time before munching on it.

After that R started spinning the Red ball and he also threw the stuff on the floor like ball, doll away. I joined with him. He stopped and was spinning the ball again. I joined him also. This time while we both were spinning the ball, he looked at me. I quickly got up and kicked the ball with my feet. R did the same thing for once

R kicked the small Red ball even though it was for couple of seconds !! HA HA , I felt like to scream at that time. HA HA !! I said to myself Baby Steps DEAR, Baby Steps DEAR !!

Finally  he got little excited and was coming to me, He was laughing and trying to wrestle with me using his head. So I tickled him and he went back to spinning the ball. 

When he looked at me again, this time I tried to kick the ball again, but he did not wanted to. But he got up and started turning the knobs on closet door. I joined him. Now he gave me sign to open the closet door. I praised him and opened it for him . He took a toy car out of the closet and started rolling it back and forth. I did the same thing with him.

After that we played little more and left. 

This was a short,sweet session full of enthusiasm !! 

Tuesday, May 1, 2012

DOES IT GET EASIER ??

I am not sure how to answer !! When I get these Questions  DOES IT EVER GET EASIER ?


"WILL IT IMPROVE" ? 
"WILL WE FIND SOLUTION TO IT"?
"WILL THIS TREATMENT WORK"?
"WILL THIS DIET PLAN WORK"?
"WILL THEY COME OUT WITH SOME TREATMENT"?
"WILL HE EVER TALK"?
"WILL HE EVER PLAY WITH ME"?
"WILL HE ENJOY THE PARTY"?
"WILL HE BE ABLE TO GO TO SCHOOL"?
"WILL HE BE ABLE TO GET JOB"?
"WILL HE BE INDEPENDENT"?

A BIG DOES with so many WIILL, What should I answer ?  Anyone ?